Tony

I have never really had much problem with sleeping. I am one of those people that can awaken during a dream and pick up where I left off if I want to: depending on who is in it that is! This week though, I have suffered a little: probably because of Rusty deciding that he/she is not a child but actually a jumping bean! At one point, in Lidl, I thought that Rusty might even be coming early. Other supermarkets are available obviously.

One night this week when I was struggling to nod off, I began thinking about my Dad, as I normally do. I know I am 35 and I have my own family but I sometimes cry into my pillow and think that I really want my Dad! Not much shame in admitting that, I do. My Dad had the ability of making everything alright, as all Dad’s do of course but, it was almost like he could inhale your worries and bury them deep inside of him: like that massive bloke in The Green Mile (if you haven’t watched it, you should have). There are times when I need him to do that for me: not just because I want him to make me feel better but, because he gave my life light. It was only when the light went out that I realised I would have to live in darkness for a while.

My boyfriend sent me this once: if you had met him you would know what a grand gesture that is (he’ll moan at me for that)

I have thought to myself on many occasions: what is the point in being such a fantastic human being and then not having anything to show for it when you are no longer around. This is part of the reason that I started this blog and part of the reason that however small my effort, I will always do my best to ensure people know what happened to my Dad so they can make sure it does not happen to their loved ones. I wish I could go back. By that, I mean that if you have read my blog, you should be nagging your Dad to have his Prostate checked. It’s not just an ‘old man’s’ disease, just like Breast Cancer does not only afflict woman over 50. My Mum was younger than me when she first found a lump. Just because you don’t have any symptoms, does not mean diddly squat!! My Dad was born in 1945 and he died in 2005. He never went to the doctors for 25 years but, there was no prize in obtaining this milestone, in fact, it was the opposite. He most definitely got the wooden spoon.

I recently visited a local Prostate Cancer support group to talk about Travel Insurance for people with pre existing medical conditions (because that is what I do as a day job) and of course, my own experiences. My Dad would not have been the youngest one there, I would! I would have given anything to find a group that we could visit together and talk to. Although, it may not seem much, I felt like I really achieved something that day, like I did something about it, instead of just feeling sorry for myself and questioning why the Universe can be such a terrible bastard sometimes. And I know I am not the only one, there are people that have suffered much worse but grief is very inward and its hard to think of others. I do think of others now though: knowing my Dad made me a better person. I hoped that my Dad would have been proud of me too.

Cancer leaves a massive trail of destruction and not just to the one it affects. My Dad said to me once that he had the easy job because, I would be the one that was left behind to deal with it and he was right. My Mum never said a lot towards the end, she couldn’t talk and so had to use a magnetic sketch pad to tell us things. Hard to convey all your final wishes in a matter of sentences eh? So why do we not do it when we can.

My Daddy! Make sure you hang onto yours tight: with both hands.

I know that I am a bit bonkers and those who know me will know that my brain and mouth have no connecting off switch. But, whatever you think of my Blog, whatever you think of me, just remember that you have a chance to change things: before it’s too late! And so why wouldn’t you?

Oooops!

Yesterday, when I shared my post and rantings with you, my Boyfriend did not offer me his usual supportive opinion. Me, being a selfish hormonal cow bag that I currently admit to being did not take this as anything but him being a big old meanie (or perhaps he just really does loves Pavarotti) Actually, though, later on in the evening, he said that he felt I had…..well I am not going to repeat it but, really I should be washing out his bearded potty mouth!! I will tell his Mum anyway.

Naturally, this was never my intention. I would never hurt him intentionally or make him feel anything less than the crazily complicated, hairy whirlwind but, life inspiring wondrous being that he truly is. Even with his potty mouth! He is bloody hard work sometimes and he drives me insane but….. Hellooooooooo, have you met me? If I am very honest, I wanted him to just sit down and talk to me and make me feel better by buttering my ego. I never ever wanted to make him feel like he was not being there for me.In actual fact, this could not be further from the truth.He is the other part of me.

There is always a rainbow after rain.

I meant everything I said. It is not always easy to deal with the fact that someone you Love has had a past without you.I do sometimes feel like I am not good enough: that he may easily find someone new or someone far more interesting and better looking and with a far less wobbly bottom. This, however, is a combination of crazy raging hormones, an always high maintenance constitution and the fact that since he came into my life, he brought the light with him and I never want it to go away!

So, I am sorry for my irrational, annoying, high maintenance, stroppy and downright unreasonable behaviour but, I can never be anything else than this.I promise though, that forever and a day, I will spend the rest of my life making sure that he knows exactly why and that he has saved me.Don’t get me wrong, I am not going to change but, that is just me being realistic. However, I am the person there to cheer him and support him and tell him that I Love him every day and if I ever appear any different, I truly do not mean to and I am sorry.

Multicoloured

Pink or blue? This week we find out! Actually though, this one is Rainbow! A Rainbow baby is a baby that has followed a loss and my little Rusty really didn’t fancy hanging around in the ether for long before he was given to me.

We are not going to tell anyone what we are having, but I will find it incredibly hard. For purposes of clarity I always refer to Rusty as a boy and so will continue to do so: I would like a boy, purely because I don’t have one. Naturally, I just want everything to be OK and this is the first concern.As a mother you worry from the moment they start to grow but, I will not be disappointed with a girl. After all I know how to deal with girls: I am an old pro at it really (OK! maybe not so old….shhhhhhh!!) I just have a horrible horrible feeling that as both of my daughters were just so amazingly good (in hindsight), that this one will be a terror. Completely in a good way of course! When they are 17 and staying in bed all day, I am sure I could then look back and laugh. Whatever happens, I have been blessed with Rusty and he is my (I should really say our) Rainbow that’s for sure!

It happened when I was at work. If I am honest, I had a niggling feeling from the moment I woke up but, I tried to put it down to wind! Sorry that was bad taste! I started bleeding and I remember thinking, ‘Please just let it be a blip, they say it happens, I have read it in magazines’: but, really I knew that this was no blip. I left and I drove home, worrying because I had left work early.I tried to focus on what I would cook for tea and what the evenings viewings would entail.Anything other than focus on what I knew was really going on in my body. I didn’t make tea and I didn’t watch the television, I just went to bed. I did this to try and forget for a bit, not breathing too heavily so as to keep it all inside. Keep it safe. And I willed everything that was there to keep growing, to hang on like a limpit with rigamortis. But, of course it didn’t and by the next day, it was pretty much completely gone. My baby had gone almost as quickly as it came.

I didn’t feel like a real person again until I was given Rusty.

It was a small comfort that I could indulge in one of my favourite hobbies again: Pinot Grigio! However, it was nice to go back to the gym and work off some frustrations and of course concentrate on my flabby bottom. Which, coincidentally is now flabbier that Pavarotti’s bicycle seat! There was however, one major hindrance concerning the gym and basically moving/walking/cuddling and this was that my boobs felt like they were in a juicer! Three weeks this continued to the point where I was genuinely worried. Given my Mum’s history and the fact that the surface area of my boobs was ordinarily so small that I barely knew they were there half the time anyway.

I have given my doctor some real ‘stick’ in the past but, to be fair! After the whole Molar Pregnancy debarcle, he deserved to be prodded with it, very hard and in his nether region. He was very kind to me now though and he humoured me as no doubt he remembered me as the nasty complainant who had wanted to poke a stick in his nethers.( He did not know this of course, mainly because I have just said it now) He is my hero now though. I weed in a pot and went on my way to indulge in my favourite hobby again I expect. Incidentally, straight after,we met my Boyfriends old friend (again, he’s not old) and wife for coffee on their way down to Cornwall.They told us of their unexpected pregnancy and how they were also given one that was slightly more challenging than their others. This is course does not still play on my mind…no no no!!

I am pretty sure my brother was the troublesome baby and I was the good one!

I suppose he called me around three hours later. ‘We had discussed your fertility earlier following your miscarriage Shushanah’, ‘I don’t really think that is an issue any more’. Blimey! That was quick!! I have absolutely no comprehension how it did not even cross my mind that I may be pregnant. I had tried to stay away from the internet regarding pregnancy after miscarriage but, what I did read was all pretty woolly. This bit is scientific: I must have ovulated exactly 11 days after and Rusty was given to us pretty much on the next love in. I know exactly what day it was too! I know! I don’t get out much!

And so to the pressing question: how are the hormones? Well, they are still having a party like its 1999! I continue to try and explain to my beloved what it feels like to be pregnant.Mentally I mean, not physically. Obviously, I am over the moon and incredibly happy with our Rusty. I do not, like some, feel like I am carrying an alien and despite the wobbly bottom, love showing off a growing bump. I do however continue to be frustrated with the feeling of sheer irrationality and irritability and what’s even more frustrating is that I do not care when I act this way because it comes from so far within the depths that if it did not come out, I would surely spontaneously combust. I am sure that most of the time, my boyfriend would prefer this option greatly.

Like a lot of people, I moan on Facebook sometimes and it helps for a while but, really I want to have a regular rant to the person closest to me. His obvious avoidance of any such instances merely compounds the feeling and not only do I get in a teenage strop but, I also feel like he does not actually want to know and does not care. I understand though that I probably would not want to talk to me either. I have to though as am kind of attached! Being pregnant can make you feel vulnerable, like you want to be looked after and anything other than 100% attention 24 hours a day just feels like the total opposite. And so I remain, horrible, selfish, unreasonable and absolutely no fun to be around but, I am doing quite an important job at the moment and it is easy to forget that. I am still me and I still have a big heart, which I want to use to its full capacity on a daily basis. It is also easy to forget that I will do anything for those I love and give everything I have for them…right the way to the end of that rainbow. I just might kick a few leprechauns on the way…..

Reflection

Reflection.

The only way I can describe it: imagine that you were stood in a beautiful field, lush and green and full of all the most beautiful flowers that you could ever picture. This would be (in theory) how I perceive my life as I live it day to day. I have two amazing children, a job that I have had for many years, enough decent people in my life, although few, that are worth hanging on to and a Man that I love with all my heart and thank my lucky stars for every day. Then, imagine that further beyond this field and all around is nothing but black and a never ending pit. However happy I continue to be, this will always be the same for me: nothing maudlin or self pitying, it is just a gap that a will never be able to alter.

The problem with hormones (and boy do I have a lot of them at the moment!), is that you realise that you are being totally irrational, yet every action that you take, you can’t control but, quite frankly, you don’t particularly care either. I want to feel wanted and I want to feel special and let’s face it, carrying a child is quite an important job and it can sometimes feel like you are the only one in the world doing it! Its lonely sometimes and I do not have the support network that I wish I did. I have said a thousand times, that I know when I am being particularly horrible but, I just cannot do anything to control it. Nor do I feel it is my fault and boy do I feel I have justification.

Social media causes a lot of issues for me in my current state. Do I want to be reminded of my Man’s exes or past dalliances, most of whom do not have a hair out of place and spend their time doing things which make them look amazing. Does it annoy me when they like every status he posts to a particular social media site apart from when it contains mention of me….ummmmm yes! For however much I try, I shall always be just a little bit normal and just that little bit not attractive enough (if that’s correct grammatical language). I am sure they are all very nice and I have no doubt that they would think that I was an utter cow. Which, at the moment, they would be correct. But, that is how I feel so I am saying it.

Mainly, I think, I just feel sad a lot of the time! I am not so much angry anymore but, think about what I am missing and how I wish things were different. But, they aren’t and no matter how hard I try, I will never be able to change that. But, I have a realisation with it and I accept it: it does not mean I have to like it though and it is because I feel so cheated that my life can sometimes get complicated. I just require extra work, extra love. Now! Any of you that have met my beautiful man will know that he is not the most tactile of human beings to say the least! I am almost positive that currently, living with me is no different to sharing a tent with Sadam Husain at a One Direction concert but, he knows me and I know him! There are occasions when his patience runs thin but, so does mine. He loves me in his own way and I am not expecting a dinner date on a hot air balloon any time soon but, I need a constant drip of love and reassurance: akin to a Tamagotchi I like to think! I will never change but, my capability of love and showing love is as deep as the hole I envisage around me everyday. This is because I have the gift of experience. We all know life is short but, we never embrace this every day. We just get caught up in living.

Reflection. We all feel a little stuck sometimes.

I am lucky enough to have a very good doctor and of late, he has kept me in check. I have been having some problems with my blood pressure in this pregnancy and am having to rest a lot of the time. It is difficult to rest completely with two children and I do feel this baby taking its toll on my body. After all, I am no ‘Spring Chicken’! (or at least this was suggested to me by a midwife I spoke to at the beginning of my pregnancy) She will go far!! As for avoiding stress: I get stressed if I can only find one of a pair of socks in my daily wash. Apart from recommending compression stockings (which has mortified me beyond belief: coupled with being fat, hormonal and moody, I am hardly feeling like Cindy Crawford as it is), he suggested that I may be suffering with some Depression myself.

Being an A Level Philosophy student, and having a little experience in dealing with Depression, I firmly believe that as I can comprehend that I am not in a Depression then this must surely mean that I don’t have it! I am just sad. I am also just a little more complicated than some. Oh, and my hormones are currently having a party that I did not really want to be invited to. Nor, does anyone that currently has the fortune, or mis, however you look at it, to come into contact with me. But, I continue to be grateful for my life and look forward to my rainbow baby. I wish my Mum and Dad were here to see all of my children and be proud of me. Probably not so much for my attitude today but, that I continue as best I can, without them and I only hope that I could do half as good a job as they did.

*I apologise to anyone that is a fan of One Direction or one of my other halves exes (or dalliances) It really is not personal (unless you are both and then I am afraid there is no hope for you)

A Diary For Rusty

All the relevant pregnancy applications and baby magazines suggest that at this time, I should start writing a diary about my pregnancy. In true defiance style, when anyone suggests I do something, I usually do something different. I also thought, if I wrote how I was really feeling at the moment and you by any chance saw it in later life, you would think I was a horrendously mean Mummy!

So, I will just get that part out of the way: how one tiny tiny thing can make you feel so utterly wretched is mind blowing to me. I have spent the last few weeks with my head pretty much wedged down the toilet, apart from the time I was sick on myself in the shower that is! I have gone off all food, nothing holds any interest to me and the idea of cooking tea for my family is comparative to Chinese water torture. Especially as there is no way I will be eating it. Most days, I have barely been able to lift my bottom from the sofa. Ironic really as mostly I have been watching ‘Come Dine With Me’.

Regardless of this, and however many times I have chastised you for sapping all my utter being, I wanted to make sure that you knew that we loved you. That we loved you already. You were a big surprise, and not because you were not wanted: quite the opposite. You see, your brother or sister had left us just a month before you started to grow and we could not quite believe how quickly you were sent to heal our hearts after they had been unable to stay.

I have never really considered my skills as a mother, I just am one. I don’t know if I am a good Mum or not. I can only love you and your sisters with all my heart and fight with everything I have for you, every day. That is all I can offer you: me. Know that I will always be here for you, even the times when you and your sisters are making me shout at you for painting the walls or shaving the dog but, through all these times I will always be a constant. Heaven forbid that I could not be around for you for as long as I want. As your Mum, in whatever form, I shall always love you and watch over and protect you forever.

You are going to be lucky enough to have one of the most amazing Daddy’s that you could ever imagine existed. Your Daddy is without doubt, one of the most spectacular people to ever walk the planet. Even if he chastises you, even if he disciplines, you cannot help but realise that he will always remain, loyal, strong and protective and although he would never admit it to anyone, he is one of the most sensitive souls and with one of the hugest hearts that you could ever find. As soon as you meet him, you will be lucky enough to see everything in him that I do and feel utterly blessed that you are able to end every day with him as part of your life. He will be strict and funny in equal amounts. Embarrassing you sometimes with his silliness but making you proud to call him your Daddy. I am utterly sure of this. I apologise in advance for the fact that he may well pick you up from school dressed as a banana! I have no control over him!

Our Rusty

As for your sisters, they are both completely bonkers! One more so than the other but, you will work out which is which when you meet them. Lani is the most thoughtful child, caring and sensitive and sometimes overly nervous but, with a heart as deep as the ocean. Flo is on her very own planet but, cannot stay mad or upset for long and will fill your life with cuddles and laughter. I wonder if you will have a little bit of both of them in you. They will be so proud of you and if they had half a chance, they would no doubt dress you up in their Build a Bear outfits. I will probably discourage that.

Unfortunately, you will never meet one set of your grandparents, as your sisters never have but, I will make sure that you know everything about them. They look out for you from somewhere else I can guarantee that. You will however have the pleasure of a Grandma who, like Mummy, will always be honest with you. She is strong but, kind and caring and you know that she must be pretty fabulous because she has made your Daddy who he is. You will share your secrets with her over cake (which she will make) and giggle with her as I have done many times over the years. She will be one of the strongest people in your life and be a huge influence in your growing years. Grampa will tut a lot, wear bright socks and moan about politics but, however much we all joke that he is old and miserable, his eyes will light up when you enter the room and contrary to what he says, he will always be sad to see you leave. As he shows with your cousins now. He will always be there for you: and smile when everyone else leaves the room!

So, until we can all meet you in person, we will continue to play you songs that we hope you will like and even though I love you madly, I will continue to grumble at you for making me sick. Particularly as I should now be enjoying spoonful’s of mustard and grated (only grated) cheese sandwiches.

Love from Mummy xxx

Ghosts Part 2

My Dad was always falling out of bed! Sometimes the dog pushed him out and sometimes he simply turned over a little too far in his sleep and…doink! He could just about feel his legs but, he could not weight bare in any way. He could get onto the commode himself and from his wheelchair to the bed was ok but, there was generally a struggle each day. Once, he was so determined to come to the next level of the house and look out of our fire escape window at the gardens next door, that he tried to drag himself up the stairs like a merman. I was fuming with him that day! He got half way up and then slid to the bottom like a sausage. He thought it was hysterical (as he did most things) I, on the other hand was furious with him for taking such a risk to his already crumbled spine: I slammed doors and called him a ‘Bloody, Pissing idiot’! Again, he thought it was hysterical.

When my Dad was in hospital, I had some help to get the downstairs ready for him coming home. We were lucky enough to live in a large town house which used to be flats so everything was pretty much self contained for him. He had a bedroom downstairs next to the living room and a bathroom where I could empty the luminous green wee from his catheter bag.We built slight ramps so he could easily wheel from room to room.The house being so old, there were tiny drops into each downstairs room. Dad could pick up things with his special ‘claw’ which helped him grip and lift things that were slightly out of his reach. Mostly, he would use it to pinch my bottom when I was getting something for him or lifting the cats tail while giggling and singing ‘Pixxxeeelina’. Some utter bastard who drove like a numpty ran over my Pixxee after my Dad had died. I was devastated to lose that connection.

It sounds completely bonkers but, there are nights when I am feeling really sad that I will close my eyes and hold out my open hand, in the anticipation that my Dad would hold it: even if just for a second. Some times I beg him to do it or to come and sit on the end of my bed so that I know he’s there, that he misses me in the way I miss him. That he still thinks of me as I do of him and if he is proud of me at all. In reality, if he did come back to me, he would probably just pinch my bum again with that bloody claw!!

My heart will always be just a little bit broken.

There were some nights that I would stay away and although I worried about leaving my Dad, I needed a release sometimes. He had nurses come in and help him also. I loved my dad with every single ounce of my being but, sometimes the pressure of looking after him was too much and I needed to escape. I was happy for it to be just the two of us but, it did make me feel very negatively towards a lot of people who I felt had forgotten us. Something I am still working through!

My Dad’s prognosis was very bleak right from the beginning. He was given months because his Cancer was discovered so late and was extremely aggressive.He was a right stubborn old sod and he died almost four years later (even after Merman and slippery sausage incidents) He waited until I was married so he knew I would not be alone and he died five weeks after that.

My beautiful girl: if not a little bit weird!

Only weeks before, something happened which should have forewarned us. I often wondered if it was a consious forewarning for my Dad. He would never have dreamed of admitting that to me, never. In the same way he would never admit about the baby in our previous house. But, it has always left me wondering. This is what happened:

I had been away overnight at my in laws and was returning as I usually did if I had stayed out,around late morning.The image of my Dad in his chair is one that I will never forget. He was sat in the living room watching the television and as his head turned to look at me coming in the front door, he turned ashen. My Dad carried a lot of expression in his face but, this day it was one of confusion and terror. There was a split second where I contemplated that the Cancer had spread to his brain and perhaps he had no idea who this intruder was. ‘Shu’?…..’You haven’t just come home?’ ‘You came home last night’. I hadn’t.

My Dad went on to explain that just as he was drifting off to sleep he was aware I was home. He said he had not heard me come in the front door but had seen me furtling around in the landing (I did and still do furtle an awful lot) and had called out to me to see what I was up to. I had walked to the entrance of his bedroom and stood in his doorway for a couple of minutes without speaking and then simply turned around and walked away. Of course, I say me, but it wasn’t me, I was 17 miles away watching trashy TV and no doubt drinking wine. My dad said there was no doubt in his mind that he was seeing a person, a solid entity (what he thought was me) that he had called out and asked me to get him a drink. We made a joke of it of course and japed that it would have been more than a little unsettling if whatever or whoever that was that night had actually brought him a drink.

This has always been a comfort to me, not frightening in any way but it is something I will take with me to my own grave and I will always wonder who exactly it was that came to collect my Dad. Dad didn’t have much time to worry about it as whoever it was accompanied him to the next world shortly after. I hope someone comes for me too when I am ready to go. I will have that drink though: Pinot Grigio naturally!

BRCA2

Would you like to know if you were going to die? Ok! I know it’s not exactly that dramatic but, for a long time now I have anguished over this one. I am lucky enough, at my age and only because of my history obviously, to have regular ultrasounds and check ups. I don’t have Mammograms because I am too young and younger (cough cough) breast tissue is much harder to read on a Mammogram than it is on an ultrasound. Mind you! I had to push for it. I had a referral from my doctor and numerous pointless conversations and telephone tennis in order to be able to have these reviews. Unbelievable really.Luckily, I stuck to my guns.

I have also been offered the BRCA2 test. As if it wasn’t a ticking time bomb in my life anyway without having any concrete confirmation of a defunct gene which could lead me down the same path as my Mother. Perhaps I am naive to think I would rather not know, particulary given my massive spiritual beliefs in life but, what would I really do if I did have the irregularity in my genes? Would I have a double mastectomy and rebuild my breasts and then have a hysterectomy? Of course I bloody wouldn’t. I don’t have the most amazing rack but, I am more than happy to leave it how it is for now. I do want more babies though: the thought of never having another child is absolutely devastating to me. I already feel like my biological clock may prohibit me anyway but, to chose to eliminate even the option for good is beyond any type of comprehension I must admit.

My daughter and I were doing the selfie before it was even popular 🙂

We have all been alerted to the BRCA2 test, mostly thanks to Angelina Jolie but, quite strangely for me, I spoke to an absolutely lovely lady whilst at work (selling her Travel Insurance) who recommended me to her specialist. The first thing she asked me and probably because of my name: Was I Jewish? Specific mutations of the gene can be associated with some ethnic groups, namely those of Ashkenazi Jewish descent. I am not Jewish by the way but, in case you were wondering Shushanah is a Hebrew name.

There can be a mutation in the BRCA1 and BRCA2 genes that can suggest that you are at higher risk of Breast and Ovarian Cancer.If there is a mutation, your risk of getting Breast Cancer can be as high as 85%. However, your environment and lifestyle can always have a big impact. Well! Of course it can! If I never left my house, it would be unlikely that I would die from being run over. No-one else in my family had Breast Cancer but, did my Mum get it because she had a genetic mutation? Her Grandma may have had it too but, as she was run over by a bus, we will never know. Do you sense where I am going with this one?

I have agonized whether I would want to have my girls tested. The truth is, it wouldn’t be up to me. They should do whatever they see fit when the time arises and should I get Breast Cancer, then we would look at that much more closely of course. I have an Insurance in place which I have had for years, if I’m being honest, I could really do with now but, that’s an utterly despicable thing to say. I could though: or I shall continue to wait for my miracle and keep on dreaming.

I never want my girls to have to go through what I did..never.

I watched an amazing programme not long ago about an utterly beautiful and inspiring girl called Kris Hallenga who started the charity Coppafeel, promoting regularly checking your breasts for lumps and irregularities whatever your age. In this day and age and with all the media attention, it really isn’t still something that young girls feel they need to do. Kris was 23 when she was diagnosed with Breast Cancer and it had spread: to stage 4! Kris now spends all her time promoting breast checking and if you have a chance to check her out, make sure you do because it’s women like her that make this world seem like it has a purpose. She does for me anyway. As I said, I am lucky enough to get checked but, I still had to fight for it and as I’m used to fighting, I stuck it out. I know how easy it would have been to give up though. Very!

Don’t misunderstand me, My Mum didn’t die of her Breast Cancer because it wasn’t caught in time. She died because she first had Breast Cancer in the 80’s. That is truly what I believe. And she was in her 30’s which was considered really young to be diagnosed at that time. If she had the treatment that there is available today, I know she would still be here. There was no Herceptin then and Radiotherapy was primitive by today’s comparison, in a Prisoner Cell Block H type of fashion. My Mum’s had spread of course, spread to her brain in the end and when she could no longer talk, she jotted down her witticisms on an Etch a Sketch type affair. My treasured Godmother Ro (who I will tell you about soon) said that she had told her that she knew I would be OK because I was strong. I never wanted to be strong. I would have much rather not been strong and had an easy life. That is me being selfish again.

My Mum was in hospital when this picture was taken. I was 15..oh and I was angry…

My Dad on the other hand, did die because he was diagnosed too late. Had he just had a routine check where Prostate testing was standard, he would still be here: infuriating me by never doing the jobs I would ask him to do whilst I was at work and then when I moaned at him, smiling at me with an almost bellowy smile that shone deep out of his soul.. If I had a time machine, I would not go back and get the Lottery numbers, I would go back 10 years, march him to a doctor and and demanded that they stick their finger up his bum right away! It really is not a difficult concept, every man over 50 should get that ‘digit up their doughnut’!

A man with Prostate Cancer after treatment or even during can have a PSA reading (Prostate Specific Amount) of 4 or under. When my Dad’s Prostate Cancer was discovered, his PSA was 2000! 2000!!! In my job whilst Medical Screening for Travel Insurance, in 13 years I have never spoken to one client with the disease who had a reading over 100. The doctor phoned me and said she was worried that I did not understand the severity of his condition (the drunk doctor I told you about before) Cheeky cow!!! Six months she told me we would get. Nearly 4 Years we were blessed with. That’s one determined, amazing, funny and much missed old git! I wish I could ask him if he would want me to be tested.

Happy fathers day you old git. Love you Dad!

Just Like Anne Boleyn.

When I was little, I always used to tell my Mum and Dad that I wanted to have five children when I grew up (If you could say I’ve even grown up now!) Five boys I wanted, can you only imagine? They would all have dark hair, wear leather jackets and we would live like they did on Happy Days. Friday after school television certainly had a lot to answer for.

After I had my first daughter, people would say that having two children was not much different to having one. What an utterly bonkers thing to say I thought. In reality though, it is true. Second time, you have the benefit of experience , you’re far less nervous and quite honestly, you have so little time that you couldn’t give a monkies anymore about the beautiful blonde on the front of Child and Parenting magazine who has seven children. No doubt she also just took her final exam to become a civil rights lawyer (whilst I may add, maintaining perfect blonde roots and not one hint of grey). These days I celebrate with a fist pump if I have managed to shave my legs more than once in a week and have caught up with all the weeks episodes of The Real Housewives. I don’t mind which but, obviously Beverley Hills is the best!

Sadly instead of taking fifteen hours to just leave the house to pop to the shops, it now takes thirty ( I would like to point out that obviously this is a slight exaggeration, but only slight) I am lucky enough to have two girls who can never be bothered to put their own shoes on and whose favourite saying is, ‘eughhhhh do I have to?’ and ‘why cant you find it’. With your first child, you delicately hand mash a ramekin of pumpkin and butternut squash to ensure your little one has a much varied diet and you label your breast milk chronologically and in order of nipple. Second time around, you’re lucky if you remember what your original nipples looked like.

Obviously I am never grumpy and I handle the strops with utter decorum and patience…

I remember how I felt on the way to our 12 week scan for my second pregnancy. Actually I didn’t feel anything. I had lost count of the amount of people who had asked me if I was very excited and you know what, I wasn’t. I don’t know why, I just wasn’t. In hind sight, it was probably because I already knew that my baby was dead. I say baby and even though they later referred to my baby in the hospital as ‘product’, it always was and always is a baby to me.

She had such a lovely face the Sonographer, I think that is what they are called. I can still see her face now. All she said to me was ‘Are you sure about your dates?’ and really I knew what that meant. It (the baby) had been gone for about four weeks apparently. I remembering hearing a high pitched squeak like a Velociraptor and wondering what it was. I realised that actually it was me.

I am going to get on my high horse now but, why on earth can the NHS not comprehend the very lay out of their prenatal screening facilities!!? I had to leave that room, still sounding a little like a Velocirapter and no doubt with an abundant amount of snot and walk past the very same bevy of pregnant ladies that were sat with me in the waiting room just minutes earlier. I felt bad for them . It must have been utterly terrifying and no doubt, all of them remember it still. I hope all of their scans were trouble free.

I know this picture is utterly disgusting but, it is the first ever picture of my eldest daughter. She poses much better now.

Warning! This bit is scientific and a little bit boring: I was diagnosed with a partial Hydatidiform Mole or Partial Molar pregnancy. Apparently this happens when two sperm are able to fertilise one embryo at the same time and this results in an imbalance or extra amount of genetic information. This embryo can therefore never develop into a normal baby but often forms a very proliferative type of afterbirth tissue. I believe the Hydatidiform Mole part is the Greek name for a bunch of grapes and this is how this type of tissue portrays itself. Nothing to do with an actual mole, Adrian or fury. (I know what you were thinking).

Because mine was partial, it looked like a normal baby on the screen at my scan. If it had been complete, it would have the appearance of a bunch of grapes and been diagnosed straight away. All good fun but bloody and utterly frustrating as the condition is rare and in my case it was hard to get the immediate answers I needed. Particularly as my consultants explanation letter was delayed because his secretary was on holiday and the first correspondence I had was a big brown envelope marked ‘Oncology’ from Charing Cross. As you know, Oncology was not a stranger to me. A Molar Pregnancy can also result in Trophoblastic Cancer…lucky me. Why couldn’t I just win the bloody lottery!

Warning! Still scientific. Still a bit boring. With Molar pregnancies, the afterbirth can continue to grow in an uncontrolled way which produces lots of pregnancy hormones (as if there was any need for more of them) and that’s the tissue that needs addressing before it can become something much more nasty. Life is strange eh, something that protects a growing baby and gives life inside you can also manifest to something that can actually be the end of you. Perhaps its like eating a blow fish if you’re really hungry. One false move and its curtains! Apparently this is what happened to Anne Boleyn (not the blow fish). Once you have one Molar, your odds are increased to have another and I think it was documented that she had many. I also think one of my past lives was in Henry VII’s reign..probably a greyhound knowing me!

I didn’t give up and after 6 months of follow up, I was able to try for Florence.

All joking aside though, I know miscarriage is really common and I am sure every woman affected is left wanting answers. I actually felt incredibly lucky to have been diagnosed with a Molar and although it could have been nasty and I have to face monitoring for any subsequent (cross fingers) pregnancies I may have, I had something most women don’t: an answer. It was much easier to deal with that way. I was lucky enough not to need any treatment but, that isn’t the result for some women. The best treatment is Chemotherapy as the next place Trophoblastic Cancer travels is usually to the lungs. Chemo again! Luminous green wee and a free NHS roast. My Daddy raved about those roasts. I’m happy to merely take his word for that.Although, I do particularly love Airplane food. Is that the same?

Over and out!!

Cooey Mr Shifter

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