Fiction

Fiction

‘This is my first piece of fiction I have written. It is not the beginning of a novel, just simply a piece of writing to see if it is even worth me going down the fiction route. It just so happens, that I am going to use any audience to gauge whether or not I really should ‘give up the day job!’ Just to be clear to my actual real life boss who I have worked for for many years, I do actually still want to work. That was merely an expression. So here goes:’

Gianni was handsome, not in the traditional sense but, in a self confident way. His line of work meant that he carried with him an ‘edge’ that most women found attractive. His dark complexion and olive skin gave him the look of a roman god, which technically, to him anyway, he was. His tailored suits and crisp white shirts left just enough darkened skin available to his admirers and his expensive watches often glistened and caught the attention of some very attractive ‘magpies’. The occasional flecks of grey in both his hair and stubble gave a weathered look and an explanation of the things he had seen during his some 27 years in a slightly ashen existence. A want for the best and most beautiful things meant that he was constantly in a bubble of euphoria, a self obsessed shallow life that gave pleasure for now but, was soon to come crashing down.

This was the day, the day that had started like any other. The day which he had woken up a wise man and upon ending he will be a broken one. The day where he was feared and admired at the same time. Where the only worry he had was that he did his job and kept his other family happy, cleaned up his mess and turned off his emotions because being a wise man, that was what you did. This is the day that he had irradiated his own flesh and blood. The day to begin all future days: the day he had killed his own sister.

There were times, particularly as the sun was sneaking down behind the clouds, that the shine on the sea looked like a flowing bed of diamonds. To him, anyway. If it really had been diamonds, he would never have found himself in this situation. Not just the situation, but the feeling deep inside him which would not go away. It resided at the bottom of his stomach like a layer of thick tar, so thick he could almost feel it and nothing he ever did could make it go away. Even the warm meditteranean sun on his face on an evening like this would not soften it.

Gianni was used to the black, his whole world was dark but, he had never known any different. From the moment he could walk he always knew the type of life he would lead. If he had lead any other, he would not be complete. He was important. He made things clean, made the bad go away and he delivered justice in a way that most people would only dream of. It was only after the events of today that that dark which previously built him up and protected him like an iron cloak had started to envelop him. The once strength he felt had become his very own black hole, pulling him further and further into it, the black tar seeping out from the inside.

Instead of the breeze and smell of the warm sun on the bark of the olive trees, Gianni found this smell like no other. He could taste it and he could feel it, it was cold. Although it was the middle of the afternoon in the most beautiful place on earth, his eyes burned with the flouresant light and the once warm free sandal bound feet were encased in crunchy blue material: man made material that made him feel like he did not exist below the ankle.He didn’t exist anymore anyway.

Why had he never thought or felt this place before: he had sent many people there, too many to count. But, his thoughts of them had ended just as soon as his eradication was complete. As soon as he had cleaned them from the dirt in which they came. A dirt that his world had created, but the dirt in which he lived. It had been easier not to comprehend that this other world existed. This world was fake, it was cold and it was sterile but, before it had never cared for anything that had any importance to him. Omertà didn’t matter here: the man in the white, hiding half of his face did not care who he touched. It was only now, in this instance that Gianni had to accept it as part of his new life. His old life, he could never go back to, he would never see in the same way. Somewhere which he had never comprehended for 27 years would now, never leave him.

Knives were an addition of power, they carried fear and they were easily gotten rid off. The beautiful warm sea which looked like diamonds sometimes and carried with it happy memories of children and sand castles was also a friend to death. The blood which once pumped through veins and carried with it feelings of love and feelings of contentment, could be washed away by this giant as if it never was, as if it never mattered.The sea was his collaborator, his playground of forget and yet now, in this cold unforgiving room, it was a distant memory to him. His whole way of life was a distant memory.

The day had started like any other. She was supposed to be somewhere else, living her life as she always did: living without knowing what he was but being proud of him anyway. In an instant, the two worlds which completed his life had merged into one and only the black remained. Those that had feared him, those that he had eradicated, that loving ‘family’ that he had felt a part of forever had been for nothing. He was on the outside looking in. He had become those that he once towered over, weak and vulnerable and most importantly: repentant.

Gianni saw the knife on the side. Had it touched her. Had she felt it. The power in which it had held for him since he was a child had dissipated into nothing but fear. Had part of her been left on its cold steel, only to be wiped away as if she never mattered either. He wanted to take all of her home, not leave one part of her behind. He wanted her complete and as she was. How could his life before betray him like this. Perhaps the ghosts had led him here. He would walk amongst those ghosts now like only an outline. The outline of a person that his shallow life had once made him anyway.

 



Truth is often stranger than..

Truth is often stranger than..

For as long as I can remember, I have loved writing. Like reading an amazing book, it can take you away to wherever you wish to go. Even now, as I sit at my kitchen table with my glass of wine and the dog in her basket, probably farting (the dog that is, not me), I have just been somewhere else. I have been writing some fiction.

I have wanted to write a book for a really long time. My idea of a book was always pretty much what I write about now. I don’t mean in a depressing way but, just the only way that I know: about life and about loss. Well, about my life and loss really.

I have never read fiction. Even before I had children, I would think that reading something that had no truth would be like wasting hours when I could be learning something, filling my mind with information I never knew. That sounds pompous I know, I don’t mean it like that. I just mean that I love real stories: true crime, I love biographies and ever since I did history in primary school, I always wanted and loved to learn new things. Only history wise, I really have very little interest in the natural breeding of the lesser spotted toad weasel!

Now, my love of writing has gone so much further. What was once initially cathartic scribblings has not only become my therapy but, my ultimate escape when it is needed. My man has his guitar and the girls have, well… a child’s life and for sometime now, I have felt pretty uneventful regarding my mark on the universe. But, I want to write. I love to write. I realise that it will probably take me no further than my small Dartmoor town but, it actually takes me everywhere I want to go.

So, I have decided. I am going to try to write some fiction. I never have before and the way in which I write means that there is no pre meditation involved. I sit at the computer and simply see what comes out. I do not know if this will work so well with fiction but, if it does, perhaps I will try to write that book. The thing that really excites me is that even if I am just the smallest bit capable, I could practically write about anything.

With this in mind, I am going to try it and I am going to let you read it. My man will no doubt say it is good but, that is because he loves me. If it doesn’t work in the same way as fact, then I shall simply shelve it until I have more practice. Let’s just suck it and see eh? Ooo that’s an idea…50 shades esq next time maybe? LOL…. xxx

BRCA2

BRCA2

BRCA2

Would you like to know if you were going to die? Ok! I know it’s not exactly that dramatic but, for a long time now I have anguished over this one. I am lucky enough, at my age and only because of my history obviously, to have regular ultrasounds and check ups. I don’t have Mammograms because I am too young and younger (cough cough) breast tissue is much harder to read on a Mammogram than it is on an ultrasound. Mind you! I had to push for it. I had a referral from my doctor and numerous pointless conversations and telephone tennis in order to be able to have these reviews. Unbelievable really.Luckily, I stuck to my guns.

I have also been offered the BRCA2 test. As if it wasn’t a ticking time bomb in my life anyway without having any concrete confirmation of a defunct gene which could lead me down the same path as my Mother. Perhaps I am naive to think I would rather not know, particulary given my massive spiritual beliefs in life but, what would I really do if I did have the irregularity in my genes? Would I have a double mastectomy and rebuild my breasts and then have a hysterectomy? Of course I bloody wouldn’t. I don’t have the most amazing rack but, I am more than happy to leave it how it is for now. I do want more babies though: the thought of never having another child is absolutely devastating to me. I already feel like my biological clock may prohibit me anyway but, to chose to eliminate even the option for good is beyond any type of comprehension I must admit.

BRCA2

My daughter and I were doing the selfie before it was even popular 🙂

We have all been alerted to the BRCA2 test, mostly thanks to Angelina Jolie but, quite strangely for me, I spoke to an absolutely lovely lady whilst at work (selling her Travel Insurance) who recommended me to her specialist. The first thing she asked me and probably because of my name: Was I Jewish? Specific mutations of the gene can be associated with some ethnic groups, namely those of Ashkenazi Jewish descent. I am not Jewish by the way but, in case you were wondering Shushanah is a Hebrew name.

There can be a mutation in the BRCA1 and BRCA2 genes that can suggest that you are at higher risk of Breast and Ovarian Cancer.If there is a mutation, your risk of getting Breast Cancer can be as high as 85%. However, your environment and lifestyle can always have a big impact. Well! Of course it can! If I never left my house, it would be unlikely that I would die from being run over. No-one else in my family had Breast Cancer but, did my Mum get it because she had a genetic mutation? Her Grandma may have had it too but, as she was run over by a bus, we will never know. Do you sense where I am going with this one?

I have agonized whether I would want to have my girls tested. The truth is, it wouldn’t be up to me. They should do whatever they see fit when the time arises and should I get Breast Cancer, then we would look at that much more closely of course. I have an Insurance in place which I have had for years, if I’m being honest, I could really do with now but, that’s an utterly despicable thing to say. I could though: or I shall continue to wait for my miracle and keep on dreaming.

BRCA2

I never want my girls to have to go through what I did..never.

I watched an amazing programme not long ago about an utterly beautiful and inspiring girl called Kris Hallenga who started the charity Coppafeel, promoting regularly checking your breasts for lumps and irregularities whatever your age. In this day and age and with all the media attention, it really isn’t still something that young girls feel they need to do. Kris was 23 when she was diagnosed with Breast Cancer and it had spread: to stage 4! Kris now spends all her time promoting breast checking and if you have a chance to check her out, make sure you do because it’s women like her that make this world seem like it has a purpose. She does for me anyway. As I said, I am lucky enough to get checked but, I still had to fight for it and as I’m used to fighting, I stuck it out. I know how easy it would have been to give up though. Very!

Don’t misunderstand me, My Mum didn’t die of her Breast Cancer because it wasn’t caught in time. She died because she first had Breast Cancer in the 80’s. That is truly what I believe. And she was in her 30’s which was considered really young to be diagnosed at that time. If she had the treatment that there is available today, I know she would still be here. There was no Herceptin then and Radiotherapy was primitive by today’s comparison, in a Prisoner Cell Block H type of fashion. My Mum’s had spread of course, spread to her brain in the end and when she could no longer talk, she jotted down her witticisms on an Etch a Sketch type affair. My treasured Godmother Ro (who I will tell you about soon) said that she had told her that she knew I would be OK because I was strong. I never wanted to be strong. I would have much rather not been strong and had an easy life. That is me being selfish again.

BRCA2

My Mum was in hospital when this picture was taken. I was 15..oh and I was angry…

My Dad on the other hand, did die because he was diagnosed too late. Had he just had a routine check where Prostate testing was standard, he would still be here: infuriating me by never doing the jobs I would ask him to do whilst I was at work and then when I moaned at him, smiling at me with an almost bellowy smile that shone deep out of his soul.. If I had a time machine, I would not go back and get the Lottery numbers, I would go back 10 years, march him to a doctor and and demanded that they stick their finger up his bum right away! It really is not a difficult concept, every man over 50 should get that ‘digit up their doughnut’!

A man with Prostate Cancer after treatment or even during can have a PSA reading (Prostate Specific Amount) of 4 or under. When my Dad’s Prostate Cancer was discovered, his PSA was 2000! 2000!!! In my job whilst Medical Screening for Travel Insurance, in 13 years I have never spoken to one client with the disease who had a reading over 100. The doctor phoned me and said she was worried that I did not understand the severity of his condition (the drunk doctor I told you about before) Cheeky cow!!! Six months she told me we would get. Nearly 4 Years we were blessed with. That’s one determined, amazing, funny and much missed old git! I wish I could ask him if he would want me to be tested.

Happy fathers day you old git. Love you Dad!

As good as it gets…again!

As good as it gets…again!

Now! Where did we get to?

The police came to see me at work once. I told the policeman that if I found my Brother first, I was going to kill him! He nodded understandably and scribbled in his note pad but, really I expect he thought that I was an utterly heartless bitch! I wasn’t of course, I was in a place where I felt I was drowning, that I would never come up. No doubt how my Brother felt at the time.
I just kept thinking that he wasn’t at all like the Coppers from The Bill. I expect that this was his most exciting job of the day. To me, it was pretty much the end of my world.

How dare he! How dare he find that things were too much for him and so he could simply decide to run away and leave it all behind. Leave me behind. I had wished that I could run away but, I had responsibilities. He had a responsibility to be my older Brother and stick around. He didn’t run away to forget though, he ran away to disappear forever.

As good as it gets...again!

Disney baby!!!

Quite often it starts with something small. Don’t get me wrong, I am not trivialising self harm but in comparison of what was to come, it was much more preferable for me. I know that sounds selfish, I should not be talking about me here but, the self harm never seemed quite so bad as the determination to simply not be here. Perhaps that was because my Dad was still here then and emotionally and subconsciously, I was leaning on him so to speak. It is quite easy to ignore it, long jumpers and tins of razor blades hidden under sofas but, it is always there, always hanging around in the ethos.

He spoke to me about it once, we were probably drunk. As we became older and the age difference seemed less, we had a great relationship. We went clubbing together, drank together and on occasion, I was particularly enamoured of some of his male friends. He wasn’t always as particularly keen on that idea but he humoured me. The infatuation was ordinarily short lived. Most of all we would spend our time playing Trivial Pursuit, listening to music and reciting practically every line from Filthy Rich and Catflap…we still do that now. Those were happy times. We still do exactly the same when we meet up though, like we can retreat to those times when we were children and we probably need that.

As good as it gets...again!

My brother was always the intelligent one, he still is!

He said that when he bled, bled away, so did the pain and the frustration and the hurt. I could comprehend that, it made sense to me. It didn’t make sense however, that he would always have to be reminded of those times, that he would always always carry it with him, wherever he chose to go in life. Physically, that reminder would always be there. That part made no sense to me. Says she with the ongoing tattoo sleeve…I know I know!! But, I chose to have forever ink on me. He didn’t choose. No-one would choose that if they could. I respected that he had shared it with me though.

That’s exactly where we are now (but better). Since I was 18 and he told me that he would intentionally cut himself, he has never spoken about his pain. But, he does now. Those times of silence in between were dark. Very dark. Mary Celeste dark!

When he was hospitalised, I remember feeling like I did with my Dad when he was. I could not wait for my Dad to come home but, I was always worried about how our lives would be different. I wanted him to come home but, I was scared about being his carer. He could not walk and he had to be lifted into bed and into his wheelchair. Would I have to wipe his bum? Would I have to give up my life to concentrate on making the rest of his easier? Of course, I would do that and I did to some extent but, it is a scary prospect when you are just obtaining your own freedom in life. Incidentally, although I didn’t have to wipe his bum ( too much), I did have to do his washing and empty his commode which was always an experience. We would joke about whether it had been a sausages and onion gravy day. Thankfully, we learned to space those very far apart!

I never thought this may happen again. This time though it was a time when I had my own family to consider : a husband and a small child to concentrate on, I was also pregnant with another. Plus, I didn’t have my Dad anymore to lean on. Those times were times that I would really rather forget. When I talked to my brother on the phone from his hospital though, it seemed like it was just the two of us in the world. Just as we had to be before, just as we had been left and although these were the darkest times, those times are behind us now and we have a crazy relationship because of it. Crazy is our middle name. Although, technically he has a certificate to prove it :)!

As good as it gets...again!

Its not Tarby…but hey 🙂

I can honestly say that I have never been so proud of anyone. Of what he was then and now what he has become is a world so far apart that you would need a wardrobe to get there again! I know that he will never be cured. I know that my beautiful fiance will never be cured but in life there is hope and you cannot have sadness or pain without happiness and love. The world is meant to be full of opposites and I firmly believe that when you are given hardship, one day you will be given back what you gave in a positive reward. I already have now to some extent and so has my Brother: in the recovery that he has achieved. If that isn’t true however, I shall be most annoyed but i will die waiting. If I am proved wrong….hey, who cares..I’ll be dead!!!

As good as it gets!

As good as it gets!

As good as it gets!

It’s very easy to blame your future on your past. In truth, it’s how we cope with the life we are dealt and in which way we wish to view it. In some ways, it has been far easier for me being the ‘Strong one’. I would always be the person busily rushing around and getting on with practicalities and quite often, leaving the hurt to be dealt with after, when I had time. I am most definitely no saint and I, like any mother of small children, often has the patience of a turnip! My dealing with the death of my parents however was much easier for me because I didn’t also have to contend with ‘The big Black Shadow’.

Being an outsider to Depression is incredibly hard. In it’s very nature, it remains a fog with no particular shape: cannot be defined or described and if that’s how it is for the sufferer, what bloody hope does any loved one have in dealing with it equally. The only clarity I profess to know is that it has none. There are no questions that you can ask and worst of all, there is absolutely nothing you can do to make it dissipate. I know what you’re thinking, ‘How does she know?’, and you would be right, I am not a first person sufferer but, I bet that my description would be equally as inadequate and informative as my Brother’s. And I have still suffered from it. Once (or twice), it has tried to steal my Brother from me and we have been fighting a tug of war with ‘The Big Black Shadow’ really ever since my Mum died.

As good as it gets!

My Brother, dressed as toothpaste, if that doesn’t make you smile, nothing will.

He came into the world unusually and that is really how he has continued to live within it. When my Mum found out she was pregnant, it was a bit of a shock. This is the most amazing tit bit of information that a picked on little sister could ever obtain and believe me, I used it many times. The fact that he wasn’t planned… In other words, I reminded him he was an accident. Particularly the time that we were due to all go out to the theatre and he tripped me up, most cleverly ensuring that my chin hit the coffee table on my way down. I was wearing my Minnie Mouse glasses at the time. They never broke. That really would have been the last straw! Stunning blue plastic they were, with Minnie Mouse appendages on the side. I also had them in red. Anyway, we never got to the theatre, we went to the hospital instead and he was disgraced for days. I utterly loved it 🙂 He always managed to bring it back however. Like the time I gently placed our Volvo in car cigarette lighter on his finger when he was being particularly annoying. Burning flesh really is a rather stinky matter!

Anyway, the stinky finger story has made me digress. Don’t be dirty!!
My Brother, again not wanting to be normal, was stuck in the Fallopian tube. Quite firmly stuck apparently and alas, it appeared that he had taken a wrong turn and would have to be removed before he started to grow and caused too much damage. My family wasn’t always unlucky, we had a miracle once. By some miracle, a dirty little batch of germs found their way into my Mum’s breathing tract and she coughed so much over night in hospital the night before the operation that she shot the little blighter right into where he should be. Please understand that these are not the most defined of scientific terms and I understand it wasn’t exactly ‘him’ but, it makes the story that much more descriptive don’t you think?

As good as it gets!

Isn’t he a cheeky little monkey…

Do I think it would be different if our parents were still here with us? Of course not! Grief and Depression are two very different things. It’s testament to this that my Brother and I experienced exactly the same life events (with a few dodgy girlfriends thrown in for him) and I never became a sufferer. I still have days when I do not want to get out of bed but, that is because I am lonely. I miss them and I miss feeling that there is someone in the world that can love me no matter what I did.
I simply believe that our Mum’s death was his catalyst. It would have arisen at a later date for sure but, in his case, he had a trigger. Most people don’t, I understand that.

It’s a very selfish condition but, so is coping with it as an outsider and trying to understand. I lost count of the times that I told my Brother he should be strong and helping me cope, not adding to my worry. I was thinking about me and how I wasn’t willing to cope with more difficulties in my life but, he just couldn’t comply, he had no control. I know he loves me but, love isn’t always enough. It is to me but, I don’t suffer. I do realise it though. That much I have learned and try to apply now but, it really isn’t easy to comprehend.

When I banged my chin on that coffee table, I knew my Mum would make it feel better. She knew she could make it feel better. I cannot in my wildest dreams imagine how it must feel to know that no amount of Love can cover a wound. I understand in respect of the fact that my Mum and Dad are no longer here and I can never feel that love again, I haven’t for a long time. My forever man suffers too and I have to be supportive and acknowledge the fact that in the rest of our lives together, he will have times where nothing I can say will help but, I wish it would. Yet, my accepting of this, although frustrating will ensure that I am always there for him, completely and wholeheartedly without judgement. As I am for my Brother. It has taken me a while to get there but, the road has been a little rocky. Blimey it has been Rocky…

As good as it gets!

My Brother and I in Disney. We went every year as a family. I wish we could go together again one day.

To be continued……. I definitely don’t want you to get bored and this story is far more than one solitary blog post believe me. I hope you stick around…

Humbled

Humbled

Humbled

Last night I had an utterly amazing message which has really touched me. It did so because it was from someone that I have never met, never spent time with or even met, yet they (she) took the time to write me an absolutely incredible and heartfelt message.

I wanted to say thank you to her and to everyone that has taken their time to let me know that they are enjoying reading my ramblings! I have even had messages from people that have said that my blog has made them think differently about certain things in their life, including everyday occurrences that would normally bother them. I am honestly and wholeheartedly so amazingly over the moon by this. What was started as merely a suggestion, has turned into something so cathartic and quite frankly utterly life changing for me. I am so dramatic!!

Humble

I saw this and I liked it.

I have not suffered one panic attack whilst driving since I have started writing. I still feel the initial bubbles sometimes (that’s the only way I can describe them) but, instead of reaching the normal terrifying crescendo, they have merely dissipated. I can then continue on my drive to work whilst listening to Billie Holiday or John 5 in peace, whilst obviously driving competently and completely unlike the stereotype of women drivers at all! (unless I have to reverse park of course)

Although, I have always thought of it as a defence mechanism, I have realised that there is absolutely nothing wrong with using humour to heal and cope, providing it is relevant and appropriate of course. Unlike the time at my Uncles cremation when my Dad moaned at me for being the only one smoking. I informed him I wasn’t!! My Uncle would have laughed, as I would. I was going to say he was just like my Mum in that respect but there was absolutely no chance of entertaining her the time she broke her tooth in half on a KitKat.

Anyway, I wanted to say thank you. I never really felt like I had much to offer and even though I still won’t be running out for lunch with J K Rowling, I want you to know that I am so grateful and I shall always remain just a normal person but, with lots of things to share.

Humbled

Life can be hard but, how we choose to view it will determine how we continue to exist. I choose to view it with humour.

Mostly, I want to thank one person in particular for making me feel like I could do anything, who always tells me he is proud of me and who, without his encouragement, I would never have got off my lazy backside and written anything. As well as the technical support he has given me, he has only really lost his patience (in regards to this anyway) half a time 😉 Therefore: to my guitar playing, White Falcon wanting, Setzer loving, Zappa crazy and Beefheart bopper man/Fiancé : I love you and I look forward to spending forever with you. With the new life you have given me. A life with hope. Always yours. Me xxxxxxxxxxxxxxxxxx

Just Like Anne Boleyn

Just Like Anne Boleyn.

Just Like Anne Boleyn.

When I was little, I always used to tell my Mum and Dad that I wanted to have five children when I grew up (If you could say I’ve even grown up now!) Five boys I wanted, can you only imagine? They would all have dark hair, wear leather jackets and we would live like they did on Happy Days. Friday after school television certainly had a lot to answer for.

After I had my first daughter, people would say that having two children was not much different to having one. What an utterly bonkers thing to say I thought. In reality though, it is true. Second time, you have the benefit of experience , you’re far less nervous and quite honestly, you have so little time that you couldn’t give a monkies anymore about the beautiful blonde on the front of Child and Parenting magazine who has seven children. No doubt she also just took her final exam to become a civil rights lawyer (whilst I may add, maintaining perfect blonde roots and not one hint of grey). These days I celebrate with a fist pump if I have managed to shave my legs more than once in a week and have caught up with all the weeks episodes of The Real Housewives. I don’t mind which but, obviously Beverley Hills is the best!

Sadly instead of taking fifteen hours to just leave the house to pop to the shops, it now takes thirty ( I would like to point out that obviously this is a slight exaggeration, but only slight) I am lucky enough to have two girls who can never be bothered to put their own shoes on and whose favourite saying is, ‘eughhhhh do I have to?’ and ‘why cant you find it’. With your first child, you delicately hand mash a ramekin of pumpkin and butternut squash to ensure your little one has a much varied diet and you label your breast milk chronologically and in order of nipple. Second time around, you’re lucky if you remember what your original nipples looked like.

Just Like Anne Boleyn

Obviously I am never grumpy and I handle the strops with utter decorum and patience…

I remember how I felt on the way to our 12 week scan for my second pregnancy. Actually I didn’t feel anything. I had lost count of the amount of people who had asked me if I was very excited and you know what, I wasn’t. I don’t know why, I just wasn’t. In hind sight, it was probably because I already knew that my baby was dead. I say baby and even though they later referred to my baby in the hospital as ‘product’, it always was and always is a baby to me.

She had such a lovely face the Sonographer, I think that is what they are called. I can still see her face now. All she said to me was ‘Are you sure about your dates?’ and really I knew what that meant. It (the baby) had been gone for about four weeks apparently. I remembering hearing a high pitched squeak like a Velociraptor and wondering what it was. I realised that actually it was me.

I am going to get on my high horse now but, why on earth can the NHS not comprehend the very lay out of their prenatal screening facilities!!? I had to leave that room, still sounding a little like a Velocirapter and no doubt with an abundant amount of snot and walk past the very same bevy of pregnant ladies that were sat with me in the waiting room just minutes earlier. I felt bad for them . It must have been utterly terrifying and no doubt, all of them remember it still. I hope all of their scans were trouble free.

Just Like Anne Boleyn

I know this picture is utterly disgusting but, it is the first ever picture of my eldest daughter. She poses much better now.

Warning! This bit is scientific and a little bit boring: I was diagnosed with a partial Hydatidiform Mole or Partial Molar pregnancy. Apparently this happens when two sperm are able to fertilise one embryo at the same time and this results in an imbalance or extra amount of genetic information. This embryo can therefore never develop into a normal baby but often forms a very proliferative type of afterbirth tissue. I believe the Hydatidiform Mole part is the Greek name for a bunch of grapes and this is how this type of tissue portrays itself. Nothing to do with an actual mole, Adrian or fury. (I know what you were thinking).

Because mine was partial, it looked like a normal baby on the screen at my scan. If it had been complete, it would have the appearance of a bunch of grapes and been diagnosed straight away. All good fun but bloody and utterly frustrating as the condition is rare and in my case it was hard to get the immediate answers I needed. Particularly as my consultants explanation letter was delayed because his secretary was on holiday and the first correspondence I had was a big brown envelope marked ‘Oncology’ from Charing Cross. As you know, Oncology was not a stranger to me. A Molar Pregnancy can also result in Trophoblastic Cancer…lucky me. Why couldn’t I just win the bloody lottery!

Warning! Still scientific. Still a bit boring. With Molar pregnancies, the afterbirth can continue to grow in an uncontrolled way which produces lots of pregnancy hormones (as if there was any need for more of them) and that’s the tissue that needs addressing before it can become something much more nasty. Life is strange eh, something that protects a growing baby and gives life inside you can also manifest to something that can actually be the end of you. Perhaps its like eating a blow fish if you’re really hungry. One false move and its curtains! Apparently this is what happened to Anne Boleyn (not the blow fish). Once you have one Molar, your odds are increased to have another and I think it was documented that she had many. I also think one of my past lives was in Henry VII’s reign..probably a greyhound knowing me!

Just Like Anne Boleyn

I didn’t give up and after 6 months of follow up, I was able to try for Florence.

All joking aside though, I know miscarriage is really common and I am sure every woman affected is left wanting answers. I actually felt incredibly lucky to have been diagnosed with a Molar and although it could have been nasty and I have to face monitoring for any subsequent (cross fingers) pregnancies I may have, I had something most women don’t: an answer. It was much easier to deal with that way. I was lucky enough not to need any treatment but, that isn’t the result for some women. The best treatment is Chemotherapy as the next place Trophoblastic Cancer travels is usually to the lungs. Chemo again! Luminous green wee and a free NHS roast. My Daddy raved about those roasts. I’m happy to merely take his word for that.Although, I do particularly love Airplane food. Is that the same?

Over and out!!

Bert!

Bert!

Bert!

My Grampy was absolutely nothing short of yummy; yummalicious in fact! Like most men of his generation and like most men with wives like my Nanny, he barely got a word in edgeways. He would always sit silently, cogitating and contemplating but, he did so with nothing but pure loving and with a heart of gold. He was so caring and everything he felt, he felt with passion and with a huge heart that seemed to just envelop you. Just like my Dad did. That’s obviously where my Dad got his loving nature from. My Grampy’s passing was certainly equally as momentous in the gap it left in my life. For more than one reason.

What I will tell you in this post is really hard for me to do so. Mainly because you will probably judge me for what I did, everyone judges. It’s a massively hurtful and negative part of life and the sad thing is that you don’t realise just how hurtful and negative it is, until you are judged yourself. Human beings can be so strange. Once you react in a certain way, say something  hurtful or act in a hurtful manner, you can not ever take it back. (Something i often tell my boyfriend, yet he still occasionally tells me to ‘Bugger Off’ when he is particularly mad with me.) Naturally, this is a most rare occurrence.

This is something I have experienced more recently when I split from my husband and also when my Dad died (but, this was in another way) When my Dad died, people actually crossed the road to avoid having to talk to me as they were embarrassed about what to say. I think they were more worried about making me upset and subsequently being embarrassed themselves.What they didn’t realise was that this was actually ten times more hurtful than simply putting their foot in it. Don’t get me wrong, I have done it too. We have all seen someone in the supermarket that we just friend requested on Facebook and then realised we actually don’t know them at all. To avoid it being awkward, we simply pretend we didn’t see them. If you’re particularly clever and spend just a little longer looking at the Wotsits, you can time it perfectly. I know it, you know it 😉

I really honestly try not to do that anymore. I definitely don’t do it in situations where I know someone has had a bereavement or a marriage break up. I am not perfect in any way but, this is one big lesson i have learned from the way that ignorance has made me feel.

Thinking about it now,I never noticed it happen when my Mum died but, I suspect that that’s because my Dad was the chosen recipient at that time. He never mentioned it to me but, i know he would have noticed. I was too busy being angry at that time however to notice anything I expect.

Bert!

My Mum and her beloved Grandad.

My lovely Grampy called me Sarah Jane: of course that’s not my name, I don’t know why he did, he just did. I much preferred this to when my Nanny would refer to me as Sherry (her sausage dog). They also called me Shuie. My Dad’s side of the family are the only people that called me Shuie and they still do. We all used to be so close. We would spend all our time together and had such a great relationship. We aren’t that close now really! It may not surprise you to know that I was angry with them too. I felt like they left me to deal with my Dad dying, left me to deal with it on my own and I was very very bitter. I have told my cousin how I felt but, I honestly don’t feel that way any more. For many reasons.I felt they should have reacted in a certain way and I never actually asked for help, even though I very much needed it. Ironically, writing this,I hope they are not angry with me for feeling that way.

 

Anyway, when my Mum died, so did my Grampy. I don’t mean just mentally or emotionally either: he did actually just die. I’m not sure of the exact time scale (I was mentally, a little busy at that time) but, it was weeks. He gave up on life, that was obvious. He adored my Mum, most people did but, when she died, you could see part of him ebb away. Don’t get me wrong, he had lots of loving family and grandchildren and he certainly adored them all alike but, he just couldn’t really accept it. He couldn’t accept what had happened to her. When my Mum’s coffin was dropped as it was being lowered into the ground, we thought he had died then. His legs gave way. He would have caught it if he could.

I remember going out in the car with my Grandparents. Their car was red (that’s such a girl thing to say) and as you drove along, you could see the road through the floor: I’m guessing the MOT system was slightly different in those days.

Bert!

My Dad on the right, Grampy in the middle and my Uncle Barry on the left.

They actually lived next door to us. We had a Cafe and my Dad had taken it over from them. When my Dad was 11, he used to open up the cafe when they went out for the day and even though he moved away and was a chef in a big hotel in Oxford for a while (that’s where he and my Mum met), he still came back and took it over from them. I guess he felt like he was 11 again. He never took a day off though…never. Even the day he flicked a tree in his eye and quite obviously scratched his cornea, he just popped on some sunglasses and opened up the cafe. He didn’t care they were my sunglasses and had bright pink detail on the side.

Bert!

My Grampy and Nanny outside the cafe.

My Grampy was a minister of a Spiritualist Church. I never really knew about that side of him, he never talked about it much. It does explain where I get it from though. I have certain friends who remain to be particularly perturbed by my premonition plane crash dreams but, you either believe or you don’t. I once read somewhere that if you believe, no evidence is necessary and if you don’t believe, no evidence is possible. My belief in spiritualists has always been very important to me and I really have no room in my life for people that mock or are unsupportive of that. Believe what you like but, if there is even one nano possibility of life after death, I am going to grab onto it with both hands. Anyone that loves me knows that and why the hell not? I think I am allowed.

My Nanny had a ‘healing room’. It always scared the complete bejesus out of me! Ironically, on the wall opposite was a huge tapestry of The Last Supper. I’m sure Jesus’ head would move when I went past. I know he had better things to do, like giving himself up for all mankind but, really, when you’re 7, who thinks about that. Quite unfortunately, the healing room was right next to the toilet in their house and although I would hang on as long as was physically possible, when nature really came a knocking I would have to perform the Linford Christie sprint to use the facilities.I always imagined my Nanny in there with big hoop earrings and hunched over a crystal ball; Like Mystic Meg, only much much wrinklier. The healing room that is, not the toilet!

When I was 18, my Nanny said something to me that will and has stayed with me forever. When having a family party to celebrate, she had too much whiskey and had spent the usual half hour telling us that she was from Bethnal Green and singing ‘Knees up Mother Braaaaan’ or some such East End ditty. We had laughed in the way we always did and she very kindly decided to say to me, ‘You are going to have a hard life you know’. The problem is, with actually having quite a hard life, i still think to myself; is that it now or will it continue to be hard. I am always waiting for the next thing. I have never quite forgiven her for that. Until the day I die, I shall always think about it. It was like a life sentence she gave me. Quite literally.

The day my Grampy died will be etched in my brain like no other. I was 16 still. My Mum died in hospital, My Dad died in hospital. Ruth died in the ambulance (just) but, my Grampy died just sat in his chair. I know that because I was there. It was the first time that the reassurance of my normality had betrayed me. The last thing he heard would have been my jibber jabber. I know he wouldn’t have minded. He loved being in his chair. Apart from when he watched the racing and then he liked being knelt on the floor with his face pressed against the television screen. I think he just did it because he was used to the usual, ‘Albeeeeeert…..you’re eyes will go square’

After a while, when he didn’t answer me, I looked over at him and I knew that he was gone. In the words of Tommy Cooper, it literally was just like that! I’m not being obtuse, my Grampy would have laughed at this description, that was the kind of man he was. He was almost yellow, like he wasn’t there anymore. He wasn’t there any more. We were on our own in that room and do you know what I did? As my Cousin and my Nanny came back in to the room, I passed them, I went to the front door and I went home (remember it was next door) As i was shutting their front door, I heard my Nanny cry out his name.

I went to my room and I put on my music and I waited for someone to come and get my Dad, which obviously they did minutes after. I couldn’t face it. I just couldn’t face it. I knew he was gone. I couldn’t and didn’t leave him alone but, I couldn’t be the one to tell my Dad. I have told my Cousins about this and I of course, told my Dad but, I didn’t tell him till years later. He thought I had just missed his passing and truthfully, he was grateful of that. How my head was then and what I had just dealt with, I just couldn’t do it. Would I do it differently? If circumstances were the same I probably wouldn’t. I was ashamed for a long time at how I handled it. It was really just too much and the more people I told the better I felt. That really is true of life. Never sit on things for long…particularly the floor with your face against the television….Albeeeeeeeeeert 🙂

I miss my Grampy still. I am sorry Grampy.

 

 

Wise Monkeys

Panic

Panic

I listened to my Mum’s Deezer playlist on the way to work on Saturday. I hate working Saturdays, who doesn’t I guess? But, I like my job. Anyone with small children will know that actually going to an office with real grown up people is a chance to remember who you used to be before you surrendered your Vagina to a team of a dozen doctors without giving a monkeys. It’s also a chance to drink a cup of tea whilst it’s warm. Not hot, because you’ll never get back to the days of hot tea, never ever. Your mind is always planning a million jobs and tea is always the last thing on it.

More recently my panic attacks have started to slowly creep back into my life. But, only whilst driving. ‘Oh, that’s OK then’ I hear you utter sarcastically. I have a routine, a routine that I know will subside the irrational blighter in my brain. I turn my air blower right up, direct the nozzles at my head and theoretically freeze my entire face for a number of seconds. I know it has nothing to do with actually curing the panic attack but, over the years, I have taught myself how to deal with them. I need a trigger. Something that I tell myself will stop it. When I realized this, it was my epiphany. Without being dramatic, it really did save my life. A book saved my life.

When I told my Dad, I played it down. Told him I kept feeling dizzy and he told me I should eat more steak. Perhaps I didn’t play it down. Really, how could I play it down when I didn’t have one clue what was happening. I didn’t even consider that I may be mental or have some incurable disease:I just thought I was unlucky and what I was experiencing was a downright pain in the proverbial.

Panic

Candy and I would spend many hours together: she was a good therapy for me.

I remember the first time really well. I was 18 and I had been shopping in Exeter. Actually, at that time I had just had my hair done and popped into Marks and Spencer food hall for a little treat. Before we had Waitrose in the darkest depths of Devonshire, this was the best option for particularly special edible posh naughtiness.

I always loved food and food was always a reward, a treat and was and still is an escape. When I was visiting my Dad on the Cancer ward in his final days, the only way I faced it with a smile was to think of ‘normal’ things. I would think to myself ‘When you get out of here Shu, you can get a pizza or something yummy and a bottle’. Then I would think about what utter tripe I would watch on television (I definitely still enjoy a large amount of tripe these days too). That took me back to normality. I still do it now. It’s no bad thing: although it was a slight pain when I was unable to get rid of excess baby weight second time around and had to lose three stone because of it. Luckily no one was ill or dying at this point and I managed it without too much struggle. Although, the reduction of the special wobbly grape was particularly difficult.

Prawns! It was prawns I was reaching for at the time. Not just any old prawns however. They came with an avocado mousse and some sort of cucumber jus on the side no doubt, all encased in a wonderful circular clear plastic dome. I remember that all of a sudden the lights seemed really bright, like they were burning through my eyeballs and into my brain. Script on the food seemed more prominent, more acute like it could actually be touched and everything started to become sort of swirly. I felt really heavy, like I could feel all my body parts, like they were square. Although I could hear and see people around me, it was like they were underwater and I was in that wonderful clear plastic dome all by myself, separate from them; like the cucumber jus. My heart was in my throat and I can honestly say that, even after watching my Mum die just a couple of years previously, I had never been so terrified in my life. I had to sit down. If I didn’t sit down I would topple over like a domino. That would most definitely be embarrassing.

It subsided pretty quickly and I brushed it off (as you do most things at 18) and started to queue. As the bile rose in my throat and I started to feel like it could happen again, I made a conscious decision to leave those prawns behind, ditch the queue and simply hop on my train and go home. From that moment, the moment that I gave into it, supermarket queues were always my Kryptonite and so they remained for at least four years. Yup, four wonderfully utterly crap and debilitating years.

18-20! That’s on average how many panic attacks I would have a day. I couldn’t wait in a queue. I couldn’t go into a shop with too many people in it. Couldn’t travel on public transport without an available seat. I couldn’t go to the cinema if I wasn’t sat by the door. I couldn’t even visit Trago mills because it was so big that once I was inside, I could not see the exit: could not reach the door in an emergency. Those people that are aware of Trago Mills will realize how utterly and completely bonkers this statement is. Not just for the sheer amount of crap you can usually purchase for less that a quid to keep your mind entertained ordinarily.

I visited my doctor several times; had blood tests for anaemia and I even ate loads more steak, just like my Dad suggested. Then, one day a different doctor said that maybe I should consider some medication to help my mood. My Mood? I was utterly fine. What a downright cheek! Peter Andre helped my mood, not medication. Actually, that was a couple of years earlier I’m sure. What on earth was this woman rabbiting on about? The bloody liability! Like an attack, I saw her mouth moving but really, nothing of consequence came out of it. Like I was the Little Mermaid under the sea again and she was that grey haired witchy villain with the rather large cleavage.

Panic

I would never have dreamed of having children if i was still suffering with such severe attacks.

I saw her at a party a few years later, pissed as a rat she was! I remember smiling and (not just because she was ‘off her tree’) but, thinking that it had been her that woke me up that day. I still can see her face now. I never took the pills, I did something else. I read a book.

The book I read was:

Panic

Panic Attacks by Christine Ingham

The very first chapter of my savior book described the reason we had panic attacks and those that they affected and in what scenarios. Guess what? Those that lost maternal figures early in life were prime candidates for panic attacks (Another negative legacy that I felt my Mum had left me with).Places that had bright lights, like supermarkets and places that had no visible exits. OK, it never ever mentioned Trago Mills per say but, I knew that’s what it meant. In just one paragraph, with one little selection of words, my life became normal again. It was me; this was like reading about me. It may as well have had a picture of me on the first page.

From that moment on, I realized that my body actually felt like I was in danger and it was actually my own stupid self trying to protect me. Damn my own stupid self! I would go to the supermarket and if I had to queue, I would simply spend the time adding up the value of my shopping in my head. It took me a while as I was always in the bottom set for math. Before I knew it, I had paid and left and absolutely nothing had happened to me. Once I had achieved it once, it was only up from there. Like the first time that i gave into the negative feeling, it was only downhill.I was still alive and what’s more, I actually had some shopping. Best of all, I went and have been several times to Trago Mills. Oh yes!

Panic

Anxiety is a much smaller part of my life now.

I have always been proud of myself for this and that’s why, at times when it creeps back into my life, I know it’s my little reminder that everything is getting just a little too much and I have to change it.

12 years later though, I didn’t read the book again, I started writing a blog instead.

Ready for ballet.

Talking Trees

Talking Trees

What a weird bloomin song: course they don’t listen to you and the stars most definitely never hear you. The trees i’m talking about! My Mum loved that song, she was always singing it. You probably have absolutely no clue what i’m talking about. It was a song that went ‘I talk to the trees, but they don’t listen to me, i talk to the stars but, they never hear me’ Weird!

My Mum loved music. Only recently i sold a whole box of eight tracks at a car boot sale. I always remember them snuggly fitting in the huge mahogany telly cupboard, right next to the big wooden globe that held all the alcohol. This included the Cherry Brandy i once managed to demolish at around 10 years old. Wouldn’t have been so bad but, i’m pretty sure it dated back to Prohibition. Years my parents dined out on that story, years! Make’s me a little green thinking of it now.

We had a Volvo. Don’t knock it, ruddy safe it was, that’s what my Dad always said. Bit ironic really when you think how proud he was about it’s safety. Did i really just say that?

Anyway, the Volvo had a cassette player (i know, all mod cons) and every Sunday when my Mum took me to the Riding stables we would listen to one or sometimes a mixture of the following: The Carpenters, Manhattan Transfer, Curiosity Killed the Cat, Lionel Ritchie or that song about some bloke that could have died in your arms tonight. I have a Deezer playlist of those songs now. They take me to a happy place. Funny really, as i never wanted to go riding much.It was always cold and if you wore more than one pair of socks, you could never feel your toes. Plus, if it was hot, never a more sweaty gusset you would get than in a pair of jodhpurs.

My Mum wanted me to love horses though, because of her history. I liked riding i guess, i was just never really that good at it. They always made me nervous and i think it was because i’m not good at taking direction.Controlling a horse is quite a responsibility I never really wanted to accept. I loved cleaning the tack and getting big stones out of hooves though.

Ballet i loved. I loved it but, i decided to give that up after several years because i was missing Knightmare and Fun House. A valid reason I stand by today. If only i knew that at the age of 34, there would be a specific channel that i could watch them all on now. Bugger!

Ready for ballet.

Ready for ballet.

My Dad never really listened to music, he just worked. He worked a lot. When he was dying he would like to borrow my CD player to try and pause some of the monotony of, well, dying (and the shame of luminous green wee). We knew it was luminous green because it was in a bag by his bed. When i asked him what he wanted to listen to he would always say ‘I love that band Erasure’ Shocking that was! Even when you’re dying: No excuse Dad!

I remember when he went to The Royal Albert Hall to see The Who. My brother took him (yes, we will get to him too: he requires his very own Terrabyte however) and he was so excited by the fact, that because he was in a wheelchair, he went to the very front and he got upgraded to first class on the train there, that he should have done the wheeled thing years ago. I gently pointed out that he would have been unlikely to obtain a wheelchair from the NHS when, even considering that he was paralysed from the waist down due to Prostate Cancer, that they still hadn’t managed to deliver two ramps in order for him to get out the house. One ramp they gave him, one! We just made our own in the end. The second ramp never came. Probably be delivered soon.

There was one good thing that came of riding and not just the hot orange squash in the winter as that was really a revelation. It was my friend Ruth. She was crazy good with the horses, especially the naughty ones: she just jumped on them and off she went, like something from a Thelwell painting . Her Mum owned the stables though so she had a head start.I loved her, I loved her a lot. I still do.She was my confident and she was the one person that when i was being an arse would say, ‘Shu, you’re being an arse’

My beautiful bessie mate

My beautiful bessie mate

The only problem i had with her was that when we were together, we were like the Abba of Devon. She was the beautiful blonde one that everyone wanted to talk to and i was the frumpy dark haired one that noone ever looked at. She was Agnetha and i was……see! Exactly! OK, i wasn’t exactly frumpy but in comparison to her i was.I still miss her, i miss her all the time. She was taken from me in a blink. Not like it was with my Mum and Dad. I never had the chance to say goodbye to her properly because she went out in her car and then she hit a tree. But you know what the last thing i said to her was and what she said to me? I love You.

That’s the God’s honest truth and that’s because we said this to each other every day. That’s the thing about losing someone so important so early, you always tell the people you love how you feel about them. This is one of the biggest lessons i have ever learnt and I’m happy that this is one of the most honest traits I have. I don’t care if it’s not reciprocated and neither should you. If you feel something, say it. You may not get another chance. Hindsight is a wonderful thing but, don’t let it be.

Me and my mate

I still surround myself with better looking blondes, when will i learn?

This is the main reason that i was so angry about my Mum’s death. She had ample opportunity and time that she knew was ebbing and yet,she didn’t make the most of it. I felt she didn’t. She never even left me a letter. This blog is my letter to her. And my apology.My apology for thinking that way.